Author Archives: Lindalupie

Lupus Ruined My Social Life

By Linda Cho

Before I was diagnosed with lupus, I would never have predicted that two of my closest relationships in my late-thirties would be with my rheumatologist and my psychotherapist. Throughout my entire pre-lupus life, I craved company. It always seemed like anything worth doing was made more enjoyable by sharing the experience with others. This, above all, is what has fundamentally changed within me s

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An Open Letter To Anyone Who Asks “How Are You” to Someone with a Chronic Illness

By Linda Cho

Dear people who don't listen after they ask, I know that we were taught as children to ask, “how are you?” I know that the inquiry has become an innocuous phrase— a polite, automatic way to follow greetings. I too, have been guilty of using “how are you’s” haphazardly. Maybe once in a while I even zoned out a little while someone answered me— you know, planned my grocery li

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He Said, “But You Look Fine.” What I Wish I Had Said

By Linda Cho

“But he said you looked fine.”  In 2011, I was hospitalized after being very sick for a long time. Concerned friends visited with their well wishes. One of my friends could not come because she was sick herself and instead, sent her boyfriend, who happened to be in the medical field and knew “all about lupus.”Apparently, he reported to her that I looked fine. I still think about that.

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